Tuesday, February 22, 2011

"If you are willing..."


An Oldie but Goodie - The family dynamics are very obvious in this photo.   

Matthew 8:1-4
What an amazing story. The Lord gave me this verse just yesterday and I am clinging to it extremely strong.

I feel like we are reaching a turning point in Jet's life and our lives for that matter. This appointment coming up in March with his geneticist has the potential  to be huge. For over 3 years we have had more questions than answers. And all of that could change with these simple words... "We've found the cause for the delay and it is treatable and curable." Oh what an Amazing day that would be!!!

In the past couple of days I have a gigantic sense urgency to pray for Jet.

I feel like I've been on a roller coaster ride of "worry" with Jet since day one. One minute I'm searching the internet high and low looking for what might be causing Jet's delays and the next minute I'm"okay" with how things are progressing.

But this sense of urgency is different. It's not worry, it's something else. I can't quite put my finger on what it is.

Matthew 8:1-4
8.1 And as he came down from the mountain crowds accompanied him. 8.2 And behold, an approaching leper knelt before him saying: lord, if you are willing, you can cleanse me. 8.3 And stretching out his hand, he touched him saying: I am willing, be cleansed. And immediately his leprosy was cleansed. 8.4 And Jesus says to him: See that you tell no one, but rather go and present yourself to the priest and offer the gift which Moses prescribed, for a testimony to them.

"Lord, if you are willing, You CAN heal him." That is my plee for Jet.

In Psalms you find repeatedly, "Lord I Cry out." I think for the first time in my life, my heart is crying out and begging our God to heal my son.

If I had a plane, I would fly a banner around the world... "Please Pray for a Divine and Profound Healing for my son."

For those that are willing, please faithfully pray for my sweet boy. We need it desperately.

For a word of Praise.
Dr. Harris said that Jet has the best looking repair that he has ever seen. In fact, he said that if he didn't know that Jet was born with a cleft he wouldn't be able to tell by just looking at his palate. That is a Huge Praise because a lot of kids have problems with their palates even after the repair is done.

Tuesday, February 8, 2011

Join me in Prayer.

 "Our Smiley Baby Boy"

"Talking to Daddy with those Hands and Eyes"

We took these pictures tonight as we were enjoying Anabella's "new" room. She now has a big girl bed and it is heart breaking that she is growing up so fast.

We are going to start pushing Jet really hard to start closing his mouth and keeping his tongue in. His receptive language has sky rocketed and he is able to understand, "Jet close your mouth." That has been neat to see. His drooling has just been horrible lately and we're not sure why that is. Today his speech therapist was impressed with how much more Jet is trying to vocalize. He is ready to start talking.

Yesterday he had physical therapy. During Physical Therapy he uses a platform swing to help him with his balance. In August of this year, he HATED the platform swing. Down right refused to get on it, because it made him so uncomfortable. And yesterday, he ask Rebecca for it. She was extremely proud of him for that. She was also concerned about the profuse amount of drool.

As most you know, a couple of weeks ago Jet visited a Geneticist. I haven't thought much about that appointment until just a few days ago. During the appointment the Doctor took a urine sample to check hormone levels and a few other metabolic issues. If it ends up being hormone or metabolic, it can be treated.

Here is my request. Please join me in praying that whatever is causing Jet's delays can be treated and he will receive healing. I pray that the diagnoses will be simple and that all of our questions will be answered. Also, if you don't mind, for the next couple of months - please add him to all of your prayer lists and ask your friends to pray for him. I strongly believe in the power of prayer and it is my desire for him to be soaking in it when we make our way back down to Oklahoma City in March for the test results.

For those of you that are faithful readers, Thank you!! It is a tremendous blessing for me to know that there are people out there that are walking with me during this journey with Jet.

Thursday, February 3, 2011

Please Enjoy.

We are snowed in and I am really okay with that. Having all 3 kids at home with nothing better to do than ding around sends me back to a simpler time before daily schedules of school and therapy.

We have good friends who live close and they were able to come play today. It was a nice treat for everybody. Jet did a great job of keeping up with the boys. Usually when we get together with friends, Jet hangs back with me and watches from a distance. However, today he tagged along and it was great to see.

Not a lot of news today - Life has been rather low key lately - - Praise the Lord!

I did want to post a video of my three wonderful children. This video really captures the family dynamics in the Patton household.

I got a crazy hair yesterday to paint Anabella's room and today we were putting everything back in her room - which is way her crib is in our room. As Jared and I are trying to get things situated I keep hearing Jet just dying laughing, so I thought - "What is going?" I grab Jared's phone and take off down the hallway, which is where the video begins.

In the video notice that Will is obviously the one that is setting the standard and the other 2 are quick to follow. Jet has ALWAYS thought his brother was Hilarious. I have video of Jet at 6 months and Will at 2.5 years old and Jet is laughing so hard he can barely sit up.

This video truly captures an average day in our house and I feel Richly Blessed to have such healthy and  happy children, because I am completely undeserving of it.

Please enjoy.

http://www.youtube.com/watch?v=kJeqYtfdETA

And to answer the question that all of you are asking... No my children don't ever actually wear real clothes. :)